I don’t have OCD (Obsessive compulsive disorder), which would
be extremely debilitating and difficult to manage. I can however have a
tendency to become obsessive, fixated on particular interests or information.
I read a blog yesterday about a state called hyper-vigilance,
which certainly resonated with me. For example, I tweet and blog. I routinely
check my hot mail, my connections on Twitter and blogger statistics, It s
incredibly interesting to see what methods produce increase in page views and
where sources of traffic emanate from. I then incorporate or discard methods
according to this information, good tool. It makes sense to use information,
but I will double check, go back to hotmail make sure I haven’t missed anything
and then quickly check the blogger stats again
in case there has been a “rush on”. This has every danger of getting out
of control for me so I have to set
limits and try to observe them, or I will still be in my PJs at 4pm checking
and re checking, I can do this. Therefore I think I have the situation under
control.
The Hyper vigilance thing though made me think as it was
introduced in the blog in terms of its connection with ME/CFS. I have a mild
form of CFS and generally manage with it OK, after a debilitating period some
years ago.
Before I was ill my husband used to say I was constantly
scanning, if we sat in a pub I would have to face the door and watch people
coming in and see who was with whom. It’s generally called nosy! I know. I didn’t
think I was particularly observant I just thought Hubby was in a world of his
own,, he never seemed to notice anything. I used to juggle loads of
responsibilities and enjoy having the ability to multi task and decry others
for being such plodders. When I was relaxing, I routinely monitored the TV read
a book and went over lists in my head. Is it any wonder really I had a crash?
I know this is controversial, the fact that I have pretty
much recovered, sometimes attracts responses that I never had CFS in the first
place. It’s such a fragile acknowledgement of the condition that those who
suffer severely and very long term feel under attack, I think, when there’s any
action which might undermine their situation and diagnosis.
This is the last thing I want to do and when I was ill it
was very real and I still moderate my whole life to be as well as I can. I wont
get into the argument whether I did or do actually have CFS or not. Other than
to say I went through the process came out with a diagnosis from a consultant and
coped the best I could. I was lucky.
My controversial point is this, is there a type of
personality that falls prey to ME/CFS? Is there any credence to the
implications of being hyper-vigilant. Now I am more vulnerable, shall we say, I
cannot have conflicting noises, (ie TV and talking) I do not like the buzz from
being in a crowd and heightened emotions agitate me immediately. Unless I have
a reasonably ordered and quiet life everything gets too much for me. The
affects are very physical the headaches, the body pain, the fatigue, sore
throat, etc engulf me. Sometimes my husband is holding my hand watching TV and
says relax, you’re all tense. I check and my legs and arms are as stiff as a
board. No wonder I ache.
Relaxing my mind has
really helped me and I know there is more to ME/CFS than an emotional condition
its very physical. I hope I haven’t upset anyone it’s the last thing I want to
do but do you think how we are and how we respond to the things that happen to
us and attack us can put us in a better or worse position in relation to our
health?
Alison x.
I found this post most informative and interesting as I suffer from ME. Your point is interesting and begs further investigation. Mine seems to get worse during stressful situations. I can zone out totally and fall into a deep sleep. Thanks for sharing.
ReplyDeleteThank you Jan for your considered and measured response, I too get much worse if I become embroiled in any emotional turmoil, whilst never taking away the fact that the route of this condition is biological / physiological When I address how I feel I have to say I have this what can I do to feel better ,have a good day and tweet with you later perhaps?
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